Quest Highlights

Complimentary Issues of two sample newsletters available.

Because of important information contained in these newsletters, we want to make sure that this information is available to the public now. We are making an exception to our policy of having a one year lag between the time when "Quest" is available to our members and when it is posted on our website.

Please enjoy these complimentary newsletters.

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Quest 84 - Summer 2010

HIGHLIGHTS

* XMRV UPDATES
* Centers for Disease Control & Prevention
* The CFIDS Association of America
* Whittemore Peterson Institute

* CAN DETECTION OF XMRV BE LINKED TO CFS?

* AMERICAN COLLEGE OF RHEUMATOLOGY PROPOSES AN ALTERNATE DEFINITION FOR FIBROMYALGIA

* ADDITION TO NATIONAL ME/FM ACTION NETWORK MEDICAL ADVISORS

* OTTAWA 2011 CONFERENCE UPDATE
Early bird highlights

PRESIDENT FRIEDBERG EXPLAINS MISSION OF IACFS/ME

SYNDROME DE FIBROMYALGIA – ABREGE DU CONSENSUS CANADIE

SUBMISSION ON THE USE OF AUDIOTAPES DURING IME’S – PART 2

WHAT’S NEW WITH CANADA PENSION PLAN DISABILITY PENSIONS

ANNOUNCEMENT – UNHEARD VOICES: MY STORY

AND MORE

PUBLISHING DATE; WEEK OF JULY 26, 2010

Quest 83 - Spring 2010

Canadian Blood Services First to Ban ME/CFS Blood Donations
May 12 Awareness Day - History
One person can make a difference
XMRV Study Planned at Hunter-Hopkins Center
Japanese Red Cross Investigates XMRV on Blood Service
Whittemore Peterson Institute and UK Study
XMRV Gets Attention From Health Officials
Ontario Special Diet Allowance to be Reviewed
How Understanding is You Doctor - Survey
Neuroendocrine Immune Center Awaits Passage
Ciguatera Testing - Protocol for Blood sample Submission
Multi-Institutional Study Underway for Biochemical Marker in ME/CFS Blood
Submission on the Use of Audiotapes During I.M.E.s
Books/Reports/Links - Including New Lyme Book Announcement

Publishing date - week of April 19, 2010

Quest 82 - Winter 2010

Announcement - IT'S OFFICIAL - OTTAWA 2011
Network takes on major project
Letter to IACFS/ME President on Ottawa 2011
Information for those wishing to give presentation at Ottawa 2011
Announcement of leadership transition at CDC
Network announces 2 addition to its medical advisers
Canadian Blood Services on XMRV and the Canadian blood supply
CIHR identifies FMS and CFS research projects
CIHR underfunds FMS and ME/CFS research
National CFIDS Foundation adds innovative research grant funding
Network's request to Public Health Agency of Canada
and more on CPP Guide, links, etc

Publishing date: Week of February 15, 2010.

View Quest 82 - Winter 2010

Special Edition - Spring/Summer 2009 - #80

This entire issue of Quest is dedicated to the report: "Profile and Impact of 23 Chronic Conditions in the 2005 Canadian Community Survey".

The author is our President, Margaret Parlor. She was talking to someone who mentioned that he sometimes did not have enough money to buy food. Having worked for many years as a statistician, Margaret wondered what the Canadian Community Health Survey, a major Statistics Canada survey, said about food security for Canadians with ME/CFS and FMS. The data indeed showed that quite a number of people were going hungry. To help give perspective to these issues, she asked how people with other chronic health conditions were affected by social issues. This report is a result of her investigations into the following areas:


Prevalence of unmet health care needs

Prevalence of food insecurity

Prevalence of Very Weak Sense of Community Belonging

Needing help for tasks

Difficulty in social situations

Permanently unable to work

Personal income under $15,000

Prevalence of chronic health conditions

Gender profile

Age distribution

Profile and impact

Additional copies can be purchased through the Network. Due to the importance of these findings, this report may be viewed & downloaded now. We encourage you to share this newsletter with family and friends, as well as politicians and health officials who can help to address the issues raised in this report.

View Quest 80

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This page was last reviewed/modified on 02/2010.