The National ME/FM Action Network is a Canadian, registered charitable organization of volunteers reaching out internationally and dedicated to helping the medical, legal and general public in spreading awareness for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Fibromyalgia (ME/CFS and FMS) through support, advocacy, education, and research and the publishing of a quarterly newsletter "QUEST" which is included with  an annual membership fee.  View the History & Achievements of the National ME/FM Action Network "Unheard Voices".....read more about this new project, we want to hear from you!   IMPORTANT NOTE: Throughout this site, Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS) are used interchangeably and this illness is referred to as ME/CFS based on the Consensus Document: Myalgic Encephalomyelitis / Chronic Fatigue Syndrome: Clinical Working Case Definition, Diagnostic and Treatment Protocols published in 2003  which has become known world-wide as The Canadian Definition.    Hot off the Press !!! "QUEST" Newsletter # 84 Highlights: XMRV Updates; Alternate definition for FMS? & more  Click on this Canada Helps logo to donate          to the National ME/FM Action Network Please donate now       BECOME A MEMBER AND JOIN THE ACTION! MEMBERSHIP APPLICATION Download  Complimentary copies  of our  Newsletter  "QUEST"     ***NEW RESEARCH STUDY, VOLUNTEERS NEEDED - INCLUDING THE SEVERELY ILL  PLANS UNDERWAY FOR UPCOMING CONFERENCE!!! - READ MORE WE NEED YOUR HELP WITH FUNDRAISING The National ME/FM Action Network will host the 10th IACFSME International Research & Clinical Conference Translating Evidence into Practice: Chronic Fatigue Syndrome, Fibromyalgia, and Related Illnesses Ottawa, Canada - Sept. 22 - 25, 2011 Presenter's Guide -> click here for more details IACFS/ME CALL FOR PAPERS FOR UPCOMING FALL ISSUE   PRIORITY FEATURES & LINKS: ME/CFS CONSENSUS DOCUMENTS                                FMS CONSENSUS DOCUMENTS HISTORY & ESTABLISHMENT OF THE CONSENSUS DOCUMENTS ME/CFS/FM OVERVIEWS   Description: Myalgic Encephalomyelitis / Chronic Fatigue Syndrome:  Clinical Working Case Definition.  Diagnostic and Treatment Protocols - A Consensus Document Fibromyalgia Syndrome: Canadian Clinical Working Case Definition.  Diagnostic and Treatment Protocols - A Consensus Document History of the development and establishment of the Concensus Documents Overviews (Summaries) of the Canadian Consensus Documents *** French FM Overview (Syndrome de fibromyalgie: Définition clinique et lignes directrice à l'intention des médecins                                               News  Spotlight - July 28, 2010 DELAY IN RELEASE OF STUDY ON CFS PROMPTS OUTCRY  07/14/2010  Can detection of xenotropic murine leukemia virus-related virus be linked to chronic fatigue syndrome?  07/16/2010 Expert Ref. Mol. Diagn. 10 (5), 537539 (2010 http://www.expert-reviews.com/doi/pdf/10.1586/erm.10.54 STATEMENT BY WHITTEMORE PETERSON INSTITUTE ON CDC XMRV STUDY  EXTRA, EXTRA! CDC’s Negative XMRV Paper Published July 1; Positive NIH-FDA Paper Sidelined    CDC REPORTS NEGATIVE XMRV RESULTS IN CFS & HEALTHY POPULATION IN THE U.S.:  Summary http://www.retrovirology.com/content/7/1/57   Full article on Provisional at http://www.retrovirology.com/content/pdf/1742-4690-7-57.pdf THE XMRV QUESTION - BLOOD TESTING? 7/1/2010 NIH & FDA CONFIRM XMRV STUDY 08/22/2010 Whittemore Peterson Institute throwing down the gauntlet 04/13/2010 Patient Questionnaire - Whittemore Peterson Institute 11/2009 Retrovirus XMRV - read the latest news!   XMRV - novel serologic assay 04/09/2010 XMRV - Quick Facts 2010 Retrovirus found in 95% of ME/CFS patients 10/2009 Secret Weapon of Retrovirus - 02/21/2010 Webcasts, podcasts, transcripts, slides, conferences, etc. XMRV & more

Website last updated July 28, 2010